Rant time - do not read if you have enough problems of your own already!
Last Sunday was the 2nd anniversary of my daughter's death. We managed to have a great weekend, having our 2nd annual "Day out for Sophie" on the Saturday and then a really good Fathers Day on Sunday. I had begun to feel that the healing process had really begun for us.
As you may have gathered from previous posts and comments, we have a lot of issues with the way my daughter was treated during her illness, and we have been complaining through the proper channels, not looking for compensation but just hoping to bring deficiencies to light and stop someone else having to go through what we went through. There is a clear process that we are supposed to follow with different organisations around to help us and add a bit of clout if we feel we are not getting what we want. Sounds great, huh?
Events of the last couple of days have confirmed a growing feeling. The entire system is geared to the protection of the establishment (especially the consultants and high ranking doctors) and intends to string things out until we run out of anger and give up. We have been lied to. We have pointed out the lies, so they have changed them for new lies. It has been suggested that we somehow sabotaged the treatment (even though there is clear written evidence to the contrary. We have asked simple, direct questions only to have these questions sidestepped. There was an independent review of events and the report was totally damning of the hospital, but this has been taken seriously either. The organisations that are supposed to ensure fair play are paper tigers with no power. In 2 years we have got nowhere, while the people involved are steadily moving away to other jobs, making our complaint increasingly pointless.
As I see it, we have 3 choices.
1 - give up. This is the easy option but it may allow healing to start. Right now I feel as lost, angry and crushed as I did 2 years ago.
2 - go for private action, which could go on for a long time and might cost lots of money that we do not have. We are seeing if there are ways of doing it on no win no fee basis or getting funding.
3 - go public with it, but this is something that our daughter was against when we were thinking of complaining shortly before she died. This is probably not really an option.
Rant over, sorry about that!